It all began with my daughter.

In 2019, my then 28-year old daughter, Alexandra, began experiencing symptoms. It was the slur in her voice that we knew wasn’t “quite right”. One year and many more symptoms later, our wonderful daughter was dealt the worst blow imaginable. It was ALS. From the moment of diagnosis, as well as the months that preceded it, emotions have run the gamut; from fear, shock, anger, heartache, sadness…it is endless and constant. If you’re reading this, you know it as well. But, also since Alex’s diagnosis, our relationship has improved immensely. I think we found a strength in each other that we never realized we had. We are tolerant and loving and it comes naturally. We also realize that we are so fulfilled when someone touches our lives. We have found a “pocketful of rainbow” in this ALS storm and we want to share it with others. Voices for ALS is for Alex. I will speak for her and push for what is right. All of our voices will become one because we all are fighting for the same “end point”…to give our family members a simple chance to live.

- Lorri Cavaliere, Founder