Voices for ALS, Inc., a 501(c)(3) charitable organization, was created in honor of Alexandra Cavaliere, our 30 year old daughter, was diagnosed with ALS in August of 2020. Refusing to believe there is no hope in this monster disease, we have and will continue to advocate for whatever works for some and share stories of hope and light, where none has been found…Until now.
We all understand the urgency to help those given a death sentence.
It’s been 153 years of darkness…
Until now.
Supporting patients and families who are dealing with the effects of ALS.
Our vision for Voices for ALS is that it become a central platform for strong familial support and creative and honest advocacy. Families form some of the strongest bonds, and we need to come together to advocate for our loved ones who can’t. We will exchange information, ask honest questions and demand truthful answers, provide education and resources, advocate for treatments that might possibly benefit our loved ones, and call out anyone trying to block them. All at the same time, become a comfort to each other during this incredibly difficult time.